Sunday, October 23, 2011

Update on Clubfeet Surgery

After the first cast change on Wednesday, Andrei was in a lot of pain. They moved his feet to the full extended position and opened all the stitches behind his ankle. This was going to be done over a four week span, but the dr. was concerned that the feet were beginning to stiffen with the tightening of the skin. The wounds are now completely opened and depending on the healing process, he may need a skin graph.
The meds this week were not helping with the pain and they were making him "crazy". We took him back to the hospital on Friday and they removed a portion of the cast. One of his knees is not use to been so straight, and the pressure of the cast on it was causing a lot of pain. Since then we have seen a lot of improvement. He is still not sleeping all night, but now he is sleeping 3 hours at a time instead of waking up screaming every hour. We have also been able to remove the heavy duty narcotics that were causing stomach pains and making him "crazy".
All of the pain he has experienced has brought back some of the orphanage survival behaviors. It has been a rough couple of weeks, but hopefully we have reached a turning point. Monday he goes back for the second cast changed. I pray this time it will not be as painful. Thank You for your continued prayers.


  1. I will continue praying for him and your family. I don't have a child with AMC, but have seen the miracles that are happening at Shriner's Philly and Dr. VB. I would say that if his pain continues to get a second opinion there. There are several RR families that all travel from around the US to go there. I am sure you could talk to them. Some have tried their local hospitals and Shriner's, but all have ended up at Shriner's Philly. I know you know best for your son, this was just a suggestion.

  2. I just wanted to drop by and say "Hi" from After the Rainbow. If you need anything please feel free to contact me and also make sure to take advantage of the After the Rainbow group (email me if you need an invite). ATR is such a great group of families and such a wealth of experience and support!

    Rachel Whitmire
    Post-Adoption Care Coordinator
    Reece's Rainbow Down Syndrome Adoption Ministry